I am
A tale in words and images about trisomy 9 mosaicism
de Emiliano Cribari Martina Biagi
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What does it mean to be the parent of a child affected by a rare disease? How does one live with the uncertainty, with the silence of science, with the awareness of being alone? Through a journey, both personal and photographic, “I Am” asks questions, while meeting with eight Italian families with children affected by trisomy 9 mosaicism, a rare illness with eleven known cases in our country. A chorus of voices demanding an identity.
Martina Biagi
Martina Biagi
Sitio web del autor
Características y detalles
- Categoría principal: Historia/Árbol familiar
- Categorías adicionales Fotografía artística, Fotografia callejera
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Características: 13×20 cm
N.º de páginas: 210 -
ISBN
- Tapa blanda: 9780368932038
- Fecha de publicación: jun. 11, 2019
- Idioma English
- Palabras clave trisomy9mosaic
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